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CHI Patient Perspectives Podcast Series New Episode: Finding a Cure: Duchenne
Submitted on:
07.10.2009
CHI-California Healthcare Institute has released its second podcast episode of its CHI Patient Perspective Series. The series examines patient experiences throughout the healthcare continuum, and touches on topics ranging from access to information and care, to breakthrough research improving quality of life, to solutions to the problems of rising healthcare costs and bureaucracy.
CHI, The Burrill Report and the Children’s Rare Disease Network released the latest episode of the Patient Perspectives Podcast Series: Searching for a Cure. Debra Miller, president and founder of Cure Duchenne, speaks about her son’s journey through treatment after being diagnosed with Duchenne Muscular Dystrophy (DMD) and how his experiences inspired her husband, Paul, and her to start Cure Duchenne. DMD primarily affects young boys and causes progressive muscle loss; it is the leading genetic killer of children and most patients do not live past their teen years. As Miller and her husband explored treatment options and sought support, they found that existing patient advocacy organizations were often focused on palliative care and focused on academic research rather than working with industry to find a cure. In this episode of the Patient Perspectives Podcast Series, Miller speaks about new approaches to treating DMD and the problems of funding cutting-edge research in search of a cure.
To download the podcast, visit
www.chi.org
or download it on
iTunes
and other podcast directories. New installments of the podcast will be launched regularly and will be available on the CHI Web site for convenient listening. To subscribe to the series click on the 
RSS Feed
.
If you have questions or issues downloading or subscribing to the series please contact Tiffany Taluban, CHI's public relations coordinator at
taluban@chi.org
or 858-551-6677.
For more information on future episodes contact Nicole Beckstrand, CHI's director of communications, at
beckstrand@chi.org
or 858-551-6677.
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