Everylife Foundation Presents: A Rare Affair for Rare Diseases


Emil D. Kakkis, MD, PhD is pleased to invite you to an
exclusive networking and wine tasting event to support the
EveryLife Foundation for Rare Diseases

A Rare Affair

The EveryLife Foundation for Rare Diseases works to accelerate biotech innovation for treatments for patients with rare diseases through science-driven public policy.  The proceeds of this fundraising event support the Foundation’s Rare Disease Scientific Workshops, held annually in the fall in Washington, D.C.

About A Rare Affair

Sunday, January 11, 2015 from 7:00 pm to 10:00 pm

The night before the start of the JP Morgan Healthcare Conference


Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates who are visiting San Francisco to attend the annual JP Morgan Health Care Conference in San Francisco.


A Rare Affair is a spectacular networking and wine tasting event. The focus is on enjoying the wine, the food, and the company, while raising awareness of the urgent need for development of rare disease treatments.


Harry Denton’s Starlight Room on the top floor of the Sir Francis Drake Hotel.  Described as “1930s glamour with a certain modern swing,” it is a signature San Francisco experience located at the top of the Sir Francis Drake Hotel. The Starlight Room features a 360-degree view “encompassing brilliant sunsets or rolling fog, city lights and landmarks from Telegraph Hill to the Bay Bridge.”



$300 each purchased 12/1/14 – 12/31/14

$350 each purchased   1/1/15 –  1/11/15